I woke up this morning with a very heavy heart. Life with our kind of autism is absolutely mentally, physically and spiritually exhausting. Life with our kind of autism isn’t featured in the media because it’s not uplifting or involving early detection (which are both so important).
What is our kind of autism? It involves aggressive behaviors that often come out of nowhere. Something misfires in my son Trevor’s brain and he goes into a rage. He doesn’t want to. This rage involves attacks on others but also on himself and ends with hysterical crying. These are not premeditated. Autism as a whole generally robs the person of social skills and awareness.
Why don’t we just medicate him? We have. Four years on the only FDA-approved medication for aggression in autism led to a 70-pound weight gain for Trevlor and the hormone that is present in pregnant women when they begin to lactate in his blood. He is on new meds (anti-anxiety this time around) and they work… except when something goes haywire in his brain.
We have been in intensive therapy since Trevor was 2 years old.
We have gone to a pediatric neurologist every year since he was 2, and have seen a psychiatrist for the last five years. We have had five behavioral specialists, six behavioral technicians, four speech therapists, two occupational therapists, and one sensory occupational therapist
Why am I writing this? Because I want the world to know my son is not “Trevor Monster” as some other children have called him (and some strangers in public clearly think with their disgusted stares). This aggression is part of his disorder. He does not like it, it does not make him feel better.
We have been hit, kicked, bitten, pinched and none of it hurts half as much as my broken heart.
There are so many kids with our kind of autism that are locked away from the world for fear of what will happen if they rage in public. My son is the sweetest kid, funny and loving. Autism robs him of his personality. Sometimes just a little bit and sometimes completely.
So, this is my Autism Awareness message. We need help. Feel free to forward and spread the message!